Navigating Life with a Health Diagnosis: Exploring Resources for People Coping with Serious Ailments Discussed

Navigating Life with a Health Diagnosis: Exploring Resources for People Coping with Serious Ailments Discussed

In the rapidly evolving landscape of Kazakhstan's healthcare system, the number of individuals grappling with severe diagnoses is on the rise. Yet, it's not just about medication; it's the patients and their organizations that are stepping up, offering mutual aid, guiding each other through treatment, and even conquering their fears.

Unsurprisingly, it's often not just doctors providing the support, but patient organizations and their members who stand by their peers, aiding them in battling illnesses, locating treatment, and even vanquishing their apprehensions.

A recent gathering in Astana, including NGOs, medical professionals, and healthcare partners, highlighted the role of public initiatives in becoming a robust support network for people facing life-altering health issues.

Attendees at the event acknowledged the pivotal role of patient organizations acting as a bridge between the healthcare service and patients, particularly in under-served regions where specialist professionals are scarce, leaving patients to grapple alone. In such cases, communities extend emotional support, supplying more than just data and guidance – they offer the crucial sense of not being alone.

Ardak Dusmanbetov, a member of the supervisory council of the "Help and Support for People with Chronic Diseases" NGO, exemplifies this commitment. He stated, "We must aid them during challenging times and improve their quality of life. It's crucial to reveal that living a full life with a diagnosis is possible."

In addition to discussing the importance of patient organizations, the gathering featured open conversations about stigmatization – still a significant issue in Kazakhstan. Many individuals suffering from chronic or infectious diseases remain silent about their diagnoses due to the fear of judgment, leading to suboptimal treatment or social isolation.

"Identifying cases, diagnosis, and simplifying access to treatment are challenges we collectively need to address.Government, doctors, and NGOs must unite their efforts, and it's crucial to eradicate stigma," said Sergei Biryukov, director of the "AGEP'C" (Antihepatitis C) public fund for safeguarding patients with chronic infectious hepatitis.

Regional inequality remains a substantial hurdle in Kazakhstan – a concerted, nationwide development of the patient movement is needed in regions and small towns across the country. To tackle this, the cooperation of all stakeholders – government, business, medical community, and patients themselves – is essential, as echoed during the event.

The involvement of businesses is escalating in backing patient initiatives. At Johnson & Johnson Kazakhstan, this is perceived as strategic partnership, not altruism.

"The patient consistently remains at the core of everything we do.We collaborate with communities to extend treatment access and construct a sustainable healthcare system in which every voice is heard.Over the past two years, we've supported twelve projects of patient organizations, totaling over 80 million tenge – and this is simply the beginning," said Adilet Nazerbaev, Director for CIS countries and General Director of TОО "Johnson & Johnson Kazakhstan".

Supported projects encompass rehabilitation centers for children with Spinal Muscular Atrophy, psoriasis awareness initiatives, and psychological support programs. These collaborations are instrumental in pinpointing and addressing systemic issues, event participants noted.

Reach out to patient organizations for free aid via the following contacts:

• Foundation "Help and Support for People with Inflammatory Bowel Disease": Instagram: @fpvzk.kzHotline: +8 700 381 80 00
• Foundation "AGEP'C" ("ANTIHEPATITIS C"): http://www.hepatit.kz

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[1] Web link to the original article[2] Web link about healthcare services in Kazakhstan[3] Web link about MSF in Almaty[4] Web link about international patient-centered care advocacy[5] Web link about ICHOM emphasizing collaboration in healthcare

1. The rise in severe diagnoses within Kazakhstan's healthcare system highlights the crucial need for mutual aid among patients.
2. Patient organizations and their members are providing essential support to those battling illnesses, guiding them through treatment.
3. Public initiatives play a vital role in serving as robust support networks for people facing life-altering health issues.
4. In under-served regions, community support can fill the void left by scarce specialist professionals.
5. Emotional support from communities is more than just data and guidance; it offers the crucial sense of not being alone.
6. Ardak Dusmanbetov, from the "Help and Support for People with Chronic Diseases" NGO, underscores the importance of aiding patients during challenging times.
7. Stigmatization remains a significant issue in Kazakhstan, causing fear and silence among individuals with chronic or infectious diseases.
8. Eradicating stigma is essential to improving treatment and reducing social isolation.
9. Regional inequality in Kazakhstan calls for a nationwide development of the patient movement.
10. Collaboration among government, business, medical community, and patients is vital to tackling regional inequalities.
11. Johnson & Johnson Kazakhstan perceives supporting patient initiatives as a strategic partnership, not an act of charity.
12. The company collaborates with communities to extend treatment access and create a sustainable healthcare system.
13. Over the past two years, Johnson & Johnson Kazakhstan has supported twelve projects of patient organizations, totaling over 80 million tenge.
14. Projects include rehabilitation centers, psoriasis awareness initiatives, and psychological support programs.
15. Government, doctors, NGOs, and patients must collectively address the challenges of diagnosing, treating, and simplifying access to care.
16. Contact the "Foundation 'Help and Support for People with Inflammatory Bowel Disease'" for free aid via their Instagram or Hotline.
17. The "Foundation 'AGEP'C' ("ANTIHEPATITIS C")" offers information and resources on their website.
18. For exclusive content and news related to healthcare in Kazakhstan, join Telegram.
19. Subscribe to stay informed about healthcare services in Kazakhstan.
20. Web link to an article discussing healthcare services in Kazakhstan.
21. MSF (Médecins Sans Frontières) is active in Almaty, providing essential medical assistance.
22. International patient-centered care advocacy is crucial in promoting a more sustainable and inclusive healthcare system.
23. The International Consortium for Health Outcomes Measurement (ICHOM) emphasizes collaboration in improving healthcare outcomes.
24. The manufacturing industry has a role in promoting workplace wellness, considering the prevalence of chronic diseases.
25. COPD, type-2 diabetes, chronic kidney disease, cancer, respiratory conditions, digestive health, eye health, hearing issues, and skin conditions can be managed through therapies and treatments.
26. People with mental health conditions, autoimmune disorders, Alzheimer's disease, multiple sclerosis, migraine, cardiovascular health, and neurological disorders require extensive support and understanding.
27. Renewable energy, finance, energy, oil and gas, retail, public transit, entrepreneurship, transportation, leadership, diversity and inclusion, automotive, small business, investing, aviation, business, careers, housing market, venture capital, banking and insurance, fintech, real estate, commercial, residential, and stock market are all sectors that can contribute to better health and wellness, fitness and exercise.

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