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Georgia's PM questions costly Duchenne treatment amid budget concerns

A life-saving drug or a drain on public funds? Georgia's leader sparks controversy by questioning high-cost therapy for rare disease. Families await a verdict.

The image shows a poster with text and a logo that reads "$160 billion the amount taxpayers will...
The image shows a poster with text and a logo that reads "$160 billion the amount taxpayers will save since medicare can negotiate lower prescription drug prices".

Georgia's PM questions costly Duchenne treatment amid budget concerns

Georgian Prime Minister Irakli Kobakhidze has called for careful consideration before funding medication for children with Duchenne muscular dystrophy. He stressed that the government must weigh the decision’s effectiveness against its cost to taxpayers. The proposed budget for the treatment ranges between 50 and 60 million GEL of public funds. Kobakhidze highlighted the need for responsibility in spending, warning that past decisions made under public pressure had led to wasted resources. He cited examples where tens of millions were spent without clear benefits. The Prime Minister also cautioned against rushing into a choice that might only profit what he called a 'pharmaceutical mafia'.

He insisted that further discussions should take place within the Ministry of Health, where the necessary expertise exists. Despite this, he remained open to changing the government’s stance if new arguments emerge during consultations.

The Prime Minister also announced readiness to engage with all stakeholders, including the Church and the Catholicos-Patriarch of Georgia. While acknowledging the political appeal of funding the treatment, he reiterated that the priority must be rational and effective use of public money. The government will continue assessing whether the proposed spending will deliver real results. Kobakhidze’s remarks suggest a cautious approach, balancing public health needs with financial accountability. A final decision will follow further expert consultations and stakeholder discussions.

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